We were hosted by an American organisation that seeks to raise awareness on Mullerian agenesis or Mayer Rokitansky Kuster Hauser syndrome (MRKH). This platform was home for us.
I could not find any organisation that spoke openly about MRKH syndrome in Kenya or Africa, thus the birth of MRKH Africa Foundation.
Before it became a fully-fledged organisation, it was just an idea in my head. It was a need – I needed someone to tell me more about my condition, to walk the journey with me and to tell Kenya, Africa and the world about it so that it is not always hard for me to speak about it.
I needed someone to fight for me. The need turned out to be my job, my story and my happy ending.
In 2014, the idea started to take shape on paper. I knew there were other girls who needed such a place; I had met them and spoken to them.
It took almost a year but eventually MRKH Africa Foundation was formed to provide a network for men and women, girls and boys who have had to sit through a diagnosis like mine.
We also raise awareness on MRKH syndrome, infertility, adoption, surrogacy and fight the stigma that surrounds all these.
My situation still has not changed. I am still barren. Now at 25 years, I do not fit in with my age mates and I do not fit in with older women who have begun their menopause at age 45 and above.
But I want to make a difference. I want to turn my pain and misfortune into a stepping stone for many other people.
Email: [email protected]
This article was first published in the Business Daily.
What Is MRKH?
MRKH (Mayer Rokitansky Küster Hauser) syndrome is a congenital (born with) abnormality, characterised by the absence of the vagina, cervix and the uterus (womb), which affects one in every 5,000 women. It is also associated with kidney, bone and hearing difficulties.
Reproductive abnormalities are due to incomplete development of the Müllerian duct. This structure in the embryo develops into the uterus, fallopian tubes, cervix, and the upper part of the vagina.The